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Advanced stages of dementia

We explain how, as dementia progresses, the symptoms experienced will change and develop.
3 min read
In this article
Symptoms of dementia – advanced stages Dementia care in the advanced stages Caring for someone with advanced dementia
When to consider residential care When your loved one might need a hospice Being admitted to hospital

Symptoms of dementia – advanced stages

As dementia progresses, memory loss and difficulties with communication often become very severe. In the later stages, more care and support from a range of people will be required. People in the advanced stages of dementia may experience some or all of the following symptoms.

Memory loss

In the later stages of dementia, people may not recognise family and friends; may forget where they live; and may not know where they are. They might find it difficult to understand simple pieces of information, carry out basic tasks or follow instructions.

Communication problems

People with dementia often have difficulty speaking and they may eventually lose the ability to speak altogether. It’s important to keep communicating with someone who has dementia, and to recognise and use other, non-verbal, means of communication such as expression, touch and gestures.

Mobility

Many people with dementia gradually become less mobile and need help to move around. They might appear increasingly clumsy when carrying out everyday tasks, and be more susceptible to accidents or falls. In the later stages of dementia, they may be unable to walk and need help with moving.

Incontinence

Bladder incontinence is increasingly likely in the later stages of dementia and some people will also experience bowel incontinence. If you’re caring for someone at home, you’ll need a continence assessment and advice from the community nursing team about management and care. Your GP can arrange this for you.

Eating, appetite and weight loss

Loss of appetite and weight loss are common in the later stages of dementia as people’s interest in food changes, and their tastes and likes can change. It’s important that people with dementia get help at mealtimes to ensure that they eat enough. Offering food that is appetising and appealing is a key part of the day and offering smaller amounts more frequently might be more successful. Seek advice from a dietician or the nursing team in the community or care facility. Being creative and adaptable is key. 

 

Some people have trouble eating or swallowing, causing risk of choking, chest infections and other problems. If you have any concerns, speak to the clinical professionals in charge of your family member’s care.

Dementia care in the advanced stages

In the later stages of dementia it’s likely that your loved one will become increasingly frail and dependent on others, meaning that they need 24/7 care. Their behaviour might mean that they need constant supervision to make sure that they don’t hurt themselves or wander off.

Caring for someone with advanced dementia

If you or other family members are able to take care of your loved one, either in their home or yours, it’s likely that you’ll need additional support. Local social services or the NHS can provide care at home.

 

Admiral Nurses are specialist dementia nurses who work with families, carers and supporters of people with dementia. They can provide practical advice, emotional support, information and professional skills.

When to consider residential care

Some people may need to go into a residential care home during the later stages of their condition. As well as information about choosing a care home and paying for a care home, use our care services directory to find a care home that specialises in looking after people with dementia.

Care homes near you
Use our directory to find local residential and nursing care homes across the UK.

When your loved one might need a hospice

In some cases, a person nearing the end of their life may be cared for in a hospice or be supported at home by the community palliative care team. Palliative care focuses on reducing physical and psychological distress, and providing support to the family. The palliative care team can help in managing symptoms and provide expert advice, generally provided by district nurses.

Being admitted to hospital

If your loved one becomes ill, they may be admitted to hospital during the later stages of their condition. Usually, people with dementia are only hospitalised because of secondary illnesses such as pneumonia.

Further reading

Mental Capacity Act

We explain what the Mental Capacity Act is, and how the law supports and protects those who are finding it difficult to ...

Getting a needs assessment

A needs assessment is crucial to getting the care support you need. Read our guidance for how to get one.

Last updated: 18 Sep 2018