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How to arrange care for someone with dementia

As the condition progresses, your loved one may need extra support in future. We look at the different options to explore when planning dementia care.
4 min read
In this article
When to consider dementia care Talking about care options with your loved one Respite care Admiral nurses
Dementia home care Dementia care homes Nursing homes

When to consider dementia care

As dementia is a progressive disease, there may come a time when your loved one needs more support than you can provide for them. When considering this situation, it’s important to explore all the options. Residential care isn’t the only available choice.

However, it can be tricky to know when it’s time to find more care for someone with dementia. And, unfortunately, there’s no definitive answer to this. 

In some cases, your loved one may be able to tell you if they need more support. But sometimes they may have lost the ability (or mental capacity) to make this decision for themselves if their condition has reached an advance stage. If a health professional confirms this is the case, someone else will need to make that decision on their behalf. There are two main options: a Lasting Power of Attorney (if the person has this in place) or a deputy appointed by the Court of Protection if not. 

Remember that you have the person’s best interests in mind and you shouldn’t feel guilty if you can no longer provide the care your loved one needs. If you’re worried about someone’s safety and know they cannot live independently anymore, it’s likely the right time to look into alternative care options. 

Talking about care options with your loved one

Discussing social care options can be a challenging conversation to have with someone who may not feel very comfortable with the prospect of change. A dementia diagnosis can lead to feelings of confusion and depression, so take your time and be sensitive when you broach the topic. Try to involve the person’s wishes as much as possible. Think about what makes the person feel comfortable and safe. 

Once you’ve raised the subject, the next step is to arrange a free care needs assessment from your local council. They will then be able to advise on the type of care and support which would best meet the person’s needs. If your loved one has had a care needs assessment in the past but their needs have changed substantially since then, you should ask the local authority to carry out a full re-assessment. 

Use our calculator to find out how much you'll pay for care in your area and what financial support is available.

Respite care

Extra support doesn’t have to look as permanent as home care or residential care. Respite means taking a break from caring, while the person you care for is looked after by someone else for a short period. It can be beneficial for both the carer and the person who needs looking after. 

There are many different options to allow you to take a break from caring. The main choices are:

Admiral nurses

You may be able to get free one-to-one specialist support from an Admiral nurse in your local community. An Admiral nurse has special training in dementia and will be able to offer expert guidance on how to manage challenging problems. They work in the community, in care homes, in hospices and hospitals. These services are funded by charity Dementia UK and supported by the NHS.

Find a local Admiral nurse through the Dementia UK website. 

Dementia home care

If your loved one needs more support on a long-term basis, home care is an option. Many people with dementia would prefer to live in their own home for as long as possible. Home care workers can help your loved one stay independent for longer. 

Domiciliary care

In this type of home care, a professional carer will visit your loved one in their home, usually on a daily basis. This type of service may suit someone who needs help with personal care, such as washing, dressing or preparing meals.

Live-in care

If more support is needed, live-in care might be a good alternative to moving to a care home. Here, a professional carer moves into the person’s home so they’re available to help during the day or at night-time. 

Dementia care homes

For continuous 24-hour support, a care home may prove to be the best option, especially if you’re starting to get anxious about your loved one’s safety and challenging behaviours. Residential care might also help someone struggling with loneliness, giving them a chance to socialise with other residents and join in group activities. 

Nursing homes

Nursing homes provide personal care just like care homes, but also include 24-hour care from qualified nurses. While both types of residential care will likely have staff who are trained in dementia care, nursing homes may be a better choice if your loved one has complex health needs – such as another medical condition alongside dementia. 

Our handy checklist provides the questions to ask when choosing a care home, if you do pursue this option. And our Care services directory can show you care options in your area which specialise in looking after people with dementia.

Care homes near you
Use our directory to find local residential and nursing care homes across the UK.

Further reading

Living well with dementia

Dementia is life changing, but it shouldn’t stop you from living an independent life for as long as possible.

Last updated: 29 Apr 2020